Greetings from Chicago! Our merry band of travelers is in Chicago for the weekend to attend the Cooley's Anemia Foundation Patient and Family Conference. Cooley's Anemia is another name for Thalassemia. Last night was the welcome reception and it was so neat to be in a room full of people that 'get' thalassemia. There is so much optimism about the future of treatments and options, the energy is incredible.
And speaking of incredible, the food was WOW! Thalassemia is kind of 'rooted' in south Asia, and the Mediteranean so guess what the food was. Yep, Chinese and Italian. Greek. The girls(as well as mom and dad) were pretty happy.
We can't wait to see what today brings. There will be seminars and speakers for us to learn from and even sessions for the kids.
In other news, we have received a few updates on Betty June. She is 40 lbs and 36 inches. She speaks Mandarin and Cantonese. She looks pretty happy in her pictures. We didn't see Belle's smile until we were in China. It is good to see Betty June's smile. Being a 6 year old she has already lost a few baby teeth and is her front two teeth in. That made me a little sad to miss.
.jpg)
.jpg)
If you notice in some of these pictures she is wearing a MICKEY MOUSE shirt.
This same little boy is in most of her pictures. He appears to have Down's or something like that. I hope he won't miss her too much. That kind of makes me sad to think about so when you say your prayers, pray for him too.
No comments:
Post a Comment